"I woke up and couldn’t walk. My hip was in unbearable pain, and no matter how much I tried to move, my body wouldn’t cooperate" - Jordan's story with Rheumatoid Arthritis
When I was 17, I noticed a small bump on my wrist. It didn’t hurt much at first, just a dull ache that came and went. I brushed it off,...
Chronically Me
Apr 2, 20252 min read
"There are days when it feels like someone is stabbing my eyes with knives...the pressure is unbearable" Romi's story navigating a childhood with chronic migraines.
My name is Romi, and I’m 21 years old. I’ve been living with chronic headaches and migraines for most of my life, and I want to share my...
Chronically Me
Mar 25, 20253 min read
"Nobody understands my new reality. POTS has disabled me" Lily's journey with POTS (Postural Orthostatic Tachycardia Syndrome) and navigating the healthcare system.
Nobody understands my new reality. POTS has disabled me. My name is Lily. . I have had symptoms of Dysautonomia my whole life....
Chronically Me
Mar 21, 20252 min read
"I lost all feeling below my belly button and could no longer walk, often collapsing to the floor, completely paralyzed from the waist down." - Breanna's story battling CRPS, FND, AMPS and more.
Starting around age five, I was constantly at the doctor’s office—so much so that my family and even the doctors called me “their...
Chronically Me
Mar 15, 20253 min read
"I was rushed into hospital during my first NES because my airway was intermittently being partially restricted.." Alicia's journey to get diagnosed with FND.
My name is Alicia Williams, I am known as Chronically Alicia on social media. I am 23 years old, live in the United Kingdom and suffer...
Chronically Me
Dec 23, 20246 min read
"No one understands the pain I go through..." Mandi's arduous journey with Crohns disease.
I was 16 when i first started showing symptoms of Crohns disease. Ive always been really skinny but the first sign I saw was that I...
Chronically Me
Nov 24, 20243 min read
"I felt like everyone was on a race track and I couldn’t even walk the damn thing without my body falling apart." A long and extremely turbulent journey to a EDS diagnoses - Tayler G's Story.
EDS is a genetic condition and it was very prevalent throughout my whole life. I experienced pain and dislocations from a very young age,...
Chronically Me
May 18, 20249 min read
"I rapidly lost weight and was in severe pain every day." - an overview of how illness can develop overnight
So my medical journey first started when I got what we think was either the flu or mono, I got sick and I just never got better. I...
Chronically Me
May 2, 20241 min read
"It hurt to sit. It hurt to stand and it f**king hurt to do my job" - A story misdiagnoses, invalidation, and learning to accept the cards you are dealt with.
This whole journey began in 2015. It's weird thinking I didn't start off having any pain and now I have a chronic pain diagnosis but...
Chronically Me
Apr 21, 20247 min read
"I was booked for a bilateral hip replacement at the age of 22." Sharan's journey and dealing with the ups + downs of chronic illness.
My name is Sharan and I was diagnosed when I was 14 years old with mixed connective tissue disease and lupus. My initial symptoms were...
Chronically Me
Apr 21, 20243 min read
Nicola's story with Gastroparesis and Fibromyalgia - in the thick of it all.
My name is Nicola, and I have suffered from gastroparesis for three years. Gastroparesis is a stomach condition where the stomach muscles...
Chronically Me
Apr 18, 20242 min read
"What had taken two years to be believed took less than twenty minutes to diagnose" - Making the transition from patient to advocate.
When I was younger I was a gymnast and an athlete. Now as a teenager I struggle with even going up and down stairs. During my early teens...
Chronically Me
Apr 18, 20241 min read
"I was hospitalised from the start of September to the middle of January.." Navigating an extreme medical journey - finding the good amidst chaos. - Lovisa's story.
I’m Lovisa , I’m 18 years old and this is my story. I was completely healthy until one day when I wasn’t. I presented with a stomach...
Chronically Me
Apr 18, 20246 min read
RJ's lifelong journey with unexplainable and undiagnosable symptoms- a learned mindset.
I’m RJ and I’ve had issues since I can remember, both mental and physical health related. I've had eczema since I was born, and when I...
Chronically Me
Apr 10, 20242 min read
"When EMS arrived, they thought I was having a stroke." - Tomika Wheeler's journey with POTS/Dysautonomia
My name is Tomika Wheeler, and I have POTS Syndrome/ Dysautonomia. I’m here to tell you my story on how I discovered I had POTS and the...
Chronically Me
Apr 8, 20243 min read