"The steroids I was put on for my Crohn’s made my hair fall out."
On February 14th, 2025 at 15 years old I was diagnosed with Crohn’s disease. For over two years I had been struggling with severe...
Chronically Me
6 days ago1 min read
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"Now even leaving the house feels like a risk I’m not always able to take."
In 2021, I was diagnosed with epilepsy as well as traumatic brain injury (TBI) affecting the frontal, right, and left regions of my...
Chronically Me
Jun 142 min read
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"I lost around 55 pounds in 2 months..." Mariana's turbulent journey in the healthcare system
My name is Mariana and I started my medical journey when I was 5. At that age, I started having extremely high fevers that could not be...
Chronically Me
Jun 62 min read
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"a battle that nearly cost me my life..." A story of medical negligence, and a search for a label.
My story with chronic illness began when I was born, during childbirth I experienced a brain bleed as a result of being born 11 weeks...
Chronically Me
May 292 min read
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"Words we carry" - A Collection of Patient Voices
These are the words we carry with us - sentences that cracked us open, gave us language for the pain, or reminded us we’re not alone. All...
Chronically Me
May 183 min read
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"...the pain grew louder—a constant, unrelenting ache that handcuffed me to my bed. Fatigue became a shadow I couldn’t outrun" - Noelle's journey with FND
I have lived in stillness. Not the kind found on a quiet morning, peaceful and comforting, but the kind that settles like fog—unwanted,...
Chronically Me
May 74 min read
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"Having 18 years of life one way and one day you wake up and your whole life changed" a life consumed by Crohn's Disease
April 4th, 2018 after almost two years of doctors appointments and unanswered questions, I was diagnosed with Crohn’s disease at 18 from...
Chronically Me
May 13 min read
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"While many around me urged me to pursue chemotherapy after 7 grueling rounds, I decided to take a different path." Aminah's story battling cancer, and finding peace beyond treatment.
My name is Aminah I’m 27 years old. I was full of life, always seeking adventure and new experiences. However, life took a sharp turn on...
Chronically Me
Apr 261 min read
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"I was voted most involved in high school. Now I struggle to simply get through a 2 hour shift." Brittany's story with POTS, EDS, Gastroparesis, and more
I was always extremely active, often only going home to sleep. That was until one day everything changed. I just kept getting hit with...
Chronically Me
Apr 152 min read
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"All my organs are mirrored on the opposite side of my body" Hannah's life with Situs Inversus.
My name is Hannah, and I’m 17 years old. I was born with a rare heart condition—my body didn’t have the natural pathway to send blood to...
Chronically Me
Apr 72 min read
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"I woke up and couldn’t walk. My hip was in unbearable pain, and no matter how much I tried to move, my body wouldn’t cooperate" - Jordan's story with Rheumatoid Arthritis
When I was 17, I noticed a small bump on my wrist. It didn’t hurt much at first, just a dull ache that came and went. I brushed it off,...
Chronically Me
Apr 22 min read
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"There are days when it feels like someone is stabbing my eyes with knives...the pressure is unbearable" Romi's story navigating a childhood with chronic migraines.
My name is Romi, and I’m 21 years old. I’ve been living with chronic headaches and migraines for most of my life, and I want to share my...
Chronically Me
Mar 253 min read
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"Nobody understands my new reality. POTS has disabled me" Lily's journey with POTS (Postural Orthostatic Tachycardia Syndrome) and navigating the healthcare system.
Nobody understands my new reality. POTS has disabled me. My name is Lily. . I have had symptoms of Dysautonomia my whole life....
Chronically Me
Mar 212 min read
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"I lost all feeling below my belly button and could no longer walk, often collapsing to the floor, completely paralyzed from the waist down." - Breanna's story battling CRPS, FND, AMPS and more.
Starting around age five, I was constantly at the doctor’s office—so much so that my family and even the doctors called me “their...
Chronically Me
Mar 153 min read
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"I was rushed into hospital during my first NES because my airway was intermittently being partially restricted.." Alicia's journey to get diagnosed with FND.
My name is Alicia Williams, I am known as Chronically Alicia on social media. I am 23 years old, live in the United Kingdom and suffer...
Chronically Me
Dec 23, 20246 min read
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"No one understands the pain I go through..." Mandi's arduous journey with Crohns disease.
I was 16 when i first started showing symptoms of Crohns disease. Ive always been really skinny but the first sign I saw was that I...
Chronically Me
Nov 24, 20243 min read
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"I felt like everyone was on a race track and I couldn’t even walk the damn thing without my body falling apart." A long and extremely turbulent journey to a EDS diagnoses - Tayler G's Story.
EDS is a genetic condition and it was very prevalent throughout my whole life. I experienced pain and dislocations from a very young age,...
Chronically Me
May 18, 20249 min read
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"I rapidly lost weight and was in severe pain every day." - an overview of how illness can develop overnight
So my medical journey first started when I got what we think was either the flu or mono, I got sick and I just never got better. I...
Chronically Me
May 2, 20241 min read
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"It hurt to sit. It hurt to stand and it f**king hurt to do my job" - A story misdiagnoses, invalidation, and learning to accept the cards you are dealt with.
This whole journey began in 2015. It's weird thinking I didn't start off having any pain and now I have a chronic pain diagnosis but...
Chronically Me
Apr 21, 20247 min read
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"I was booked for a bilateral hip replacement at the age of 22." Sharan's journey and dealing with the ups + downs of chronic illness.
My name is Sharan and I was diagnosed when I was 14 years old with mixed connective tissue disease and lupus. My initial symptoms were...
Chronically Me
Apr 21, 20243 min read
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