Chronically Me

Hi, my name is Bryanna Ramsey, and this is my story. At the age of 5, I started having horrible headaches, body pain, balance issues, and many other symptoms. My mom started taking me to doctors constantly, and we were always told, “She’s just trying to skip school. She’s fine.” At 11, I started 6th grade and began playing the clarinet. Every time I would play my instrument, I would end up throwing up. I went to the doctor for it and was told I had asthma and to just use an inhaler before I...

Hi! My name is Sierra Erdman-Luntz. I am now 24 years old, working my dream job, and live independently all while coping with hEDS and co. Specifically, I’m diagnosed with hEDS, POTS, MALS, occipital neuralgia, thoracic outlet syndrome, migraines, anemia and have suspected MCAS and endometriosis. I’ve been central line dependent for the last almost 3 years for my hydration due to a combination of my gi issues, inability to tolerate water, and severe POTS. I now have a wonderful team of...

Hi, my name is Addie Carroll and this is my story. At the young age of 10, I was living a normal life as any 4th grader would. I was always out going, not shy and was always able to be myself. I enjoyed making new friends at my new elementary school I had recently transferred to. Around the first quarter of my 4th grade year, I had a normal strep infection. Everyone gets them so I started to carry on with my life until I woke up a completely different person one morning. A flip had switched...