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Trying to Learn While Fighting to Be Believed - A collection of patient voices.

Education is often described as the great equalizer. The bridge between potential and opportunity, school being a place where every student is given the chance to succeed.

But for many students living with chronic illnesses, fluctuating conditions, or invisible diseases, school becomes a place where their realities are questioned and safety is compromised.


These experiences are often absent from broader conversations surrounding education. Discussions about academic achievement and student well-being rarely include the perspectives of those navigating school while managing chronic pain, fatigue, autoimmune conditions, neurological disorders, rare diseases, and countless other invisible conditions.


School is a place where young people begin forming their identities. It is where they discover their confidence, develop relationships, and determine what they believe they are capable of achieving. But when a student's lived reality is repeatedly dismissed within that environment, the consequences are profound.


The stories that follow are lived experiences shared by students from our community—students who have had to navigate inaccessible classrooms and push forward with extraordinary resilience.


"I have POTS and in cosmetology school my teacher told me if I can't deal with standing all day then maybe I should self-reflect and accept that some people just have the luxury of living in their parents' basement while the 'rest of us work for a living.' Being a cosmetologist had been my dream since 3rd grade, and that one sentence almost completely destroyed my passion."

"A teacher told me in front of my peers that I shouldn't be missing school for appointments because I don't have cancer like another student did."
"I'm a Type 1 diabetic, and I had a 504 plan in high school. Every 6 months I had to have a meeting to review it, and my vice principal repeatedly told us that '...diabetes isn't a real disease and you don't need a 504 for tests.' He continued to single me out and berate me unfairly."
"I was told countless times by school nurses and office staff that I needed to 'troop through' the day despite being in indescribable pain. I missed a majority of the 'fun' things my senior year because of my health and was outcast by my peers."
"I had a teacher constantly make fun of me in front of the whole class for my attendance and bad grades when I was missing school due to a prolonged endometriosis flare that made even getting out of bed extremely painful."
"I got told that I gave myself ulcerative colitis to miss school by drinking coffee by the vice principal."
"I was told I couldn't bring my wheelchair on field trips because 'we couldn't possibly accommodate if every student had a wheelchair.' Mind you, I was the only student with a wheelchair."
"When I was in too much pain to move in class, a teacher told me '...yeah well I'm in pain too. You just have to suck it up.' I could barely sit, walk, or breathe without being in excruciating pain."
"My school refused me a 504 plan because it was for kids who 'really needed it,' and later they continued to not accept my doctor's notes to excuse my absences."
"A teacher openly calls me 'surgery girl' even though he knows my name."
"I had a teacher and student teacher who would talk about me in the back of the class, saying '...it's not that hard to come to school.' I was diagnosed with Occipital Neuralgia, which is also known as the suicide disease. It's always 'mental health matters' until you are not present in the classroom, or until your illness is invisible."
"My school's administration made me carry my lunch tray while on crutches because I had to 'learn to live with my disability.'"
"When I was 13 I was very depressed and struggling to even wake up in the morning. My mom explained what was going on to my school, and they told her to put me in an asylum."
"I break bones often, and in 8th grade I was between casts and braces for over 6 months. A teacher—in front of the entire class—said to another staff member, 'I can't believe she keeps faking it.'"

No student should have to choose between their health and their education.

No student should feel like they must earn compassion by becoming visibly ill enough.

And no student should leave school believing that asking for help is something to be ashamed of.


For students living through similar experiences, we hope these stories offer reassurance that you are not alone.


For educators, administrators, policymakers, parents, and anyone with the ability to shape educational spaces, we hope these stories serve as a reminder that accessibility is not limited to ramps and elevators. It is found in the willingness to believe student and to build classrooms where every learner is afforded dignity.



------

Clinical definitions will never capture the full weight of living with these conditions.


But we can.


Chronically Me.






 
 
 

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