Chronically Me

Education is often described as the great equalizer. The bridge between potential and opportunity, school being a place where every student is given the chance to succeed. But for many students living with chronic illnesses, fluctuating conditions, or invisible diseases, school becomes a place where their realities are questioned and safety is compromised. These experiences are often absent from broader conversations surrounding education. Discussions about academic achievement and student...

Hi, my name is Bryanna Ramsey, and this is my story. At the age of 5, I started having horrible headaches, body pain, balance issues, and many other symptoms. My mom started taking me to doctors constantly, and we were always told, “She’s just trying to skip school. She’s fine.” At 11, I started 6th grade and began playing the clarinet. Every time I would play my instrument, I would end up throwing up. I went to the doctor for it and was told I had asthma and to just use an inhaler before I...

Hi! My name is Sierra Erdman-Luntz. I am now 24 years old, working my dream job, and live independently all while coping with hEDS and co. Specifically, I’m diagnosed with hEDS, POTS, MALS, occipital neuralgia, thoracic outlet syndrome, migraines, anemia and have suspected MCAS and endometriosis. I’ve been central line dependent for the last almost 3 years for my hydration due to a combination of my gi issues, inability to tolerate water, and severe POTS. I now have a wonderful team of...